Voices from the Shadows

Stanford Medical School ME/CFS Symposium screening of ‘Voices from the Shadows’

‘Voices’ was screened at the Stanford Medical School ME Symposium last week on March 19th, followed by a panel discussion – ‘Media Portrayal of ME’. The symposium was packed with doctors and researchers as well as some patients, in a very large hall with three screens at the Li Ka Shing Center for Learning and Knowledge. It  Read more »

Videos from ‘Exercise & ME/CFS’ Event at Bristol Watershed now online

Presentations from the Exercise and ME/CFS event in Bristol in Feb 5th, following a screening of Voices can be now be watched here (found under the screenings tab)

Exercise and ME/CFS evening a success

The ‘Exercise and ME/CFS – the evidence’ evening in Bristol went extremely well. It was oversubscribed  - completely packed with around 120 people – despite terrible weather, massive traffic jams and extensive flooding in Somerset. Prof Mark VanNess, Dr Nigel Speight and Erinna Bowman all gave very good presentations after a 30 min version of  Read more »

Stanford Symposium March 19th

The programme for the March 19th Stanford Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Symposium is available to view at http://chronicfatigue.stanford.edu/documents/ChronicFatigueSyndromeCME2014-FORMS-r3a.pdf

Bristol Watershed. Tickets are no longer available for “Exercise and ME/CFS” – Feb 5th. 2014

“Exercise and ME/CFS – the evidence” Watershed, Harbourside, Bristol   6.30 – 9.15 pm  Feb 5th 2014. Tickets are all sold.  here on the ‘shop’ page.    Programme available  here –  Programme   This event has been approved for 2 CPD credits. Enquiries to North Bristol FME/CFS Support Group call 0844 887 2475   We  are very  Read more »

Treatment called Graded Exercise Therapy (GET)..may not help ME/CFS, but actually can make it worse.

An article today in the American Banking and Market News -  Nov 20th 203 says- “At a medical conference today sponsored by the NewYork ME and CFS Center at Mt. Sinai and held at the New York Academy of Medicine, researchers showed that a form of treatment called Graded Exercise Therapy (GET) which has been  Read more »

2014 Stanford ME/CFS Symposium: Advances in Clinical Care and Translational Research

Stanford University’s ME/CFS Initiative will be holding a conference on campus in Palo Alto, California March 19, 2014 focusing on ME/CFS related clinical and research activities occurring at Stanford University Stanford University Department of Infectious Disease will present the  symposium  ”Advances in Clinical Care and Translational Research” on March 19th  2014 at  the Li Ka Shing Center for  Read more »

Tsunagari Movie Festival Tokyo.

Dec 8th. Screening of ‘Voices from the Shadows’ at the Tsunagari Movie Festival in Tokyo  About 20 documentary movies on the disabled  will be screened between December 5th -9th at Shibuya UPLINK, supported by the Agency for Cultural Affairs in Japan.  “Voices” will be screened by Japan ME Association on December 8th. The festival is organized to ask for integrative  Read more »

Verein ME/CFS Schweiz – Conference with “Voices” screening – Zurich – Nov. 2nd

A conference and film screening organised by Verein ME/CFS Schweiz will beheld at the Zurich University Hospital - UniversitätsSpital Zürich – November 2nd – from 9.30am till 6pm. Speakers will include Dr. med. Leif Hanitsch (Charité  Berlin)  ”Diagnose, Behandlung und Forschung an der Charité und Update zu Rituximab”,  Prof. Dr. med. Werner Z’Graggen (Inselspital Bern) Facharzt für Neurologie, Leiter neurovegetatives Labor “Orthostatische  Read more »

Open letter from ME experts to US Secretary of Health and Human Resources in support of the Canadian Criteria.

In the USA there are alarming moves for Health and Human Services (HHS) to ask the Institute of Medicine (IOM) to construct new clinical criteria for ME/CFS. This would impact on patients around the world. It has caused great concern because the IOM’s previous attempt at criteria for Gulf War Syndrome has not been at all  Read more »