“Exercise and ME/CFS – the evidence” Watershed, Bristol 6.30pm Feb 5th 2014. Tickets are now available here on the ‘shop’ page. Flier available here. The ‘Exercise and ME/CFS – the evidence’ evening with Prof Mark VanNess at Bristol’s Watershed follows the day after his visit to Belfast to address MPs and medical professionals at Stormont. This is a unique opportunity in Read more »
Treatment called Graded Exercise Therapy (GET)..may not help ME/CFS, but actually can make it worse.
An article today in the American Banking and Market News - Nov 20th 203 says- “At a medical conference today sponsored by the NewYork ME and CFS Center at Mt. Sinai and held at the New York Academy of Medicine, researchers showed that a form of treatment called Graded Exercise Therapy (GET) which has been Read more »
Stanford University’s ME/CFS Initiative will be holding a conference on campus in Palo Alto, California March 19, 2014 focusing on ME/CFS related clinical and research activities occurring at Stanford University Stanford University Department of Infectious Disease will present the symposium ”Advances in Clinical Care and Translational Research” on March 19th 2014 at the Li Ka Shing Center for Read more »
Dec 8th. Screening of ‘Voices from the Shadows’ at the Tsunagari Movie Festival in Tokyo About 20 documentary movies on the disabled will be screened between December 5th -9th at Shibuya UPLINK, supported by the Agency for Cultural Affairs in Japan. “Voices” will be screened by Japan ME Association on December 8th. The festival is organized to ask for integrative Read more »
A conference and film screening organised by Verein ME/CFS Schweiz will beheld at the Zurich University Hospital - UniversitätsSpital Zürich – November 2nd – from 9.30am till 6pm. Speakers will include Dr. med. Leif Hanitsch (Charité Berlin) ”Diagnose, Behandlung und Forschung an der Charité und Update zu Rituximab”, Prof. Dr. med. Werner Z’Graggen (Inselspital Bern) Facharzt für Neurologie, Leiter neurovegetatives Labor “Orthostatische Read more »
Open letter from ME experts to US Secretary of Health and Human Resources in support of the Canadian Criteria.
In the USA there are alarming moves for Health and Human Services (HHS) to ask the Institute of Medicine (IOM) to construct new clinical criteria for ME/CFS. This would impact on patients around the world. It has caused great concern because the IOM’s previous attempt at criteria for Gulf War Syndrome has not been at all Read more »
The Stanford ME/CFS Initiative website has been updated and a link to the Summer 2013 Newsletter is posted http://chronicfatigue.stanford.edu/documents/Newsletter_2013.pdf on the main page http://mecfs.stanford.edu This is exciting news as Dr Montoya and his colleagues now have a solid foundation in place so things really are starting to move more quickly and many more people are Read more »
£1,029,411 Grant awarded by NIH to researchers at the London School of Hygiene and Tropical Medicine
The London School of Hygiene and Tropical Medicine has announced that the Bio Bank project, which is lead by Dr Luis Nacul with Dr Eliana Lacerda and Erinna Bowman has been awarded a grant worth over £1 million over three years, by the National Institutes of Health (NIH) in the USA. The press release states Read more »
Naomi, who made a substantial and heart-rending contribution to ‘Voices from the Shadows’, has had a very moving half page article published in the Daily Telegraph paper today – June 24th. She writes vividly about her own experiences and more extensively about one of her friends, Emily, who died last year after suffering horribly – Read more »
NEWRY & MOURNE ME/FMS SUPPORT GROUP NEWS UPDATE – All patients in N.I. can now inform and ENCOURAGE their consultants and doctors that free information on Myalgic Encephalomyelitis is available on request. Newry & Mourne ME/FMS Support Group thank the Health Minister’s Office for their continued support as they have done previously when informing all Read more »