I am delighted to announce a new ME project, Dialogues for a neglected illness, which Josh Biggs and myself, Natalie Boulton, will be working on, after having made ‘Voices from the Shadows’ together. The London School of Hygiene and Tropical Medicine’s Cure-ME team members, Eliana Lacerda, Luis Nacul, Caroline Kingdon and Jack Butterworth will be giving us help and support as consultants and will host a screening and discussion event at the LSHTM.
The project has recently been awarded a Wellcome Public Engagement Fund Award. We are thrilled at this generous support from Wellcome which will enable us to make a very much better and more thorough project, with more input from patients, than we could have hoped for without support. The award lasts for three years but we are hoping to complete the majority of the videos within the next 18 months.
Dialogues for a neglected illness will consist of a website with a series of short videos and links to existing material, creating a multi-faceted picture of ME – covering different aspects of the illness from both patient and professional perspectives, and the issues that have engulfed them. It will involve interviews and input from doctors, researchers, patients and carers, to make a resource which we hope will be of use in enabling patients to help their doctors and other health, education and research professionals understand more about their illness and the issues they face. The project will also be hosted on the Cure-ME (LSHTM) and ME Research UK websites, where it can be easily accessed.